Welcome to the December edition of our quarterly e-newsletter for researchers who are involved in, or are interested in being involved in, the Raine Study.

December / January Hours
The Raine Study office will be closed over the Christmas and New Year Holiday Break from Saturday 21st December 2019 and will re-open on Monday 6th January 2020. We wish you and your loved ones a happy holiday break and start to the New Year.

As always, if you have any questions please email raineadmin-sph@uwa.edu.au and we will direct your enquiry to the most appropriate team member.

The Raine Study 12th Annual Scientific Meeting a success

Over 150 guests attended our 12th Annual Scientific Meeting - an opportunity to recognise 30 years of impact amongst our research community. 

Congratulations go to Ms Laura Wijs and Dr Jason Charng for winning the prizes for top Early Career Researcher Presentations. Special thanks to the Raine Medical Research Foundation for donating these prizes. 

You can read our full wrap-up of the day here. 

For those who could not attend, a recording of the morning presentations is available via a private YouTube link:

• Welcome by Professor Leon Straker and Official Opening by Professor Simon Biggs
• Life is an off-label condition: Why we need longitudinal studies  and why longitudinal studies need us. Guest keynote by Professor Melissa Wake.
• 30 years of achievement and a bright future for the Raine Study, Professor Peter Eastwood.
• Longitudinal Trajectories in the Raine Study, Dr Paola Chivers, Dr Darren Beales, Ms Carly McLaughlin, Dr Nigel McArdle and Assoc Professor Joanne McVeigh.
• Understanding participant experience through a social marketing lens, Dr Leesa Costello, Dr Julie Dare and Gen2 participants Rosanna Candler and Glenn Bowman.

ANNUAL SCIENTIFIC MEETING 2020

We are in the process of planning the 2020 Annual Scientific Meeting.

We have three dates in mind:
1. Friday 30th October 2020
2. Friday 6th November 2020
3. Friday 13th November 2020

In order to ensure as many of our researchers as possible can attend, we would love your feedback on the above dates and if there are any major conference or event clashes we may not have thought of.

PLEASE VOTE FOR YOUR PREFERENCES ON OUR DOODLE POLL AT THIS LINK. 

IF THERE ARE ANY MAJOR CONFERENCE CLASHES WE SHOULD BE AWARE OF, PLEASE REPLY TO THIS EMAIL. 

ROSS UPDATE

Over the year, our team has been working on updates to the Raine Online Submission System (ROSS) based on your feedback. Those using the system would have noticed several changes on the look, functionality, and supporting information on how to use the system are already in place. 
 
Over the next few months we expect to make more exciting updates to assist with the management of projects and will have a final new version of the system early in 2020. 
 
Please feel free to contact us (simply hit reply to this email) with any feedback related to the updates, we really value your input on how we can improve the system.

GRANT APPLICATION PROCESS

For researchers wanting to submit a grant / fellowship application involving the Raine Study, just a reminder to allow enough time to follow our project review process. 

The first step is to have a conversation with our Scientific Management Committee about your idea. You can contact the Scientific Officer.

All new grant/fellowship applications related to projects involving the Raine Study existing data should be formally submitted in ROSS at least 8 weeks prior to the funding application deadline, and proposals for use of existing biosamples or for collection of new data and/or biosamples should be formally submitted in ROSS at least 10 weeks prior to the funding application deadline.

You will need to get provisional approval from the Raine Study prior to submitting your application to a funding agency.

All grant/fellowship applications must include financial support for data access and ongoing curation of the Raine Study resources and should cover the total cost of the research project, including any data or biosample retrieval or collection and biosample analysis.

You can find out more about our process on our website here. 

DATA ACCESS REQUESTS 

For both experienced and new Raine Study researchers, finding the relevant data for your approved project within the enormous amount of data available can be challenging. Researchers often get excited about the breadth of the data available and end up requesting more data than what is needed to complete their project. 

We encourage researchers to communicate with the Raine Study team if they need clarification about any variables within our dataset before submitting their data access request in ROSS. We also encourage researchers to keep the number of variables requested to a minimum, and select only the variables required for the analysis plan described in their project. Requesting for more data than necessary not only creates extra work for the data management team but can also be overwhelming for the data handlers and hinder the progress of the project. 

Finally, we would like to remind you to keep the number of data handlers to a minimum, as only those co-investigators listed in your approved project who will work with the raw data should be listed as data handlers. 

GEN3 DATA COLLECTION UPDATE

Thanks to all of you who replied to a call out for the type of information you would like us to collect on Gen3. As a result we are currently working on a standard data collection for all Gen2 participants giving birth.